National Organization for Rare Disorders

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The National Organization for Rare Disorders is an American non-profit organization aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.

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Peter L. Saltonstall
President & CEO

Peter L. Saltonstall

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Edward Neilan
Chief Medical & Scientific Officer
Pamela Gavin
Executive Vice President
Prashant Goel
VP, Information Technology
Alexa Moore
VP, Development
Heidi Ross
VP, Policy & Regulatory Affairs
Norine Schwarzchild
VP, Human Resources
Jill L. Pollander
VP, Patient Services
Neeta Kotecha
VP, Finance
Rebecca Aune
Director, Education Programs
Debbie Drell
Director, Membership Services