National Organization for Rare Disorders

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The National Organization for Rare Disorders is an American non-profit organization aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.

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Peter L. Saltonstall

President & CEO

Peter L. Saltonstall

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Edward Neilan

Chief Medical & Scientific Officer

Pamela Gavin

Executive Vice President

Prashant Goel

VP, Information Technology

Alexa Moore

VP, Development

Heidi Ross

VP, Policy & Regulatory Affairs

VP, Human Resources

VP, Patient Services

VP, Finance

Director, Education Programs

Debbie Drell

Director, Membership Services

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Board of Directors

9 members

Leadership Team

10 members

CEO and Executive Team

3 members

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