ADCY5.org supports the patients, clinicians, and researchers involved with the rare disease patient community affected by ADCY5-induced dyskinesia and other ADCY5-related conditions that are caused by mutations of the ADCY5 gene. The mission of ADCY5.org includes the following:
 
·         To identify and communicate with patients and their families affected by ADCY5 gene variants. ADCY5.org works to build a community that provides support and educates patient families regarding life with an ADCY5 variant.
 
·         To identify and communicate with any researcher or clinician in the world who works in fields encompassing ADCY5 gene mutations.  As a neutral party, the organization looks to support researchers and clinicians who leverage established clinical science best practices and open data principals.
 
·         ADCY5.org pursues cutting-edge precision medicine technology is needed to advance foundational research or treatments related to ADCY5 gene mutations.

ADCY5.org

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