Alport UK is a patient-led organisation dedicated to facilitating a support and information network for all those affected by Alport Syndrome.

our vision:
To ensure that all individuals and families with Alport Syndrome feel empowered to enjoy the best quality of life.

our mission:
Working in partnership with individuals, families and the scientific community we will:

Facilitate a support network for patients and families
Be a conduit for high quality, accessible information
Raise the profile of Alport Syndrome in the scientific community
Contribute to the international research agenda
Collaborate on the development of a UK patient registry and alliance of international patient registries.

Alport UK

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