Lilia E. is currently a Chargée de mission SoFFoet at AP-HP, specializing in rare diseases within the Anomalies du Développement et Déficience intellectuelle de Causes Rares sector. From 2008 to 2015, Lilia served as a Coordinatrice d'études cliniques at AP-HP and contributed to a clinical study on hereditary immunodeficiencies as an ARC CEREDIH from 2006 to 2008. Lilia earned a Doctorate in Life Sciences from Université Louis Pasteur and completed a DIU-FIEC focused on clinical trials at Université Pierre et Marie Curie.
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