Congenital Central Hypoventilation Syndrome (CCHS)
is an extremely rare disorder that affects the body’s ability to control basic functions, such as breathing during sleep. There are no available treatments to date beyond mechanical ventilation. The CCHS Network is casting a light on this orphan disease to ensure a brighter future for our small but determined community.



Our Mission

Building Community, Empowering Patients, Championing Research

The CCHS Network has a multi-focused mission of education and support of our families and CCHS patients, inter-family and family-physician communication, and supporting and facilitating CCHS research.


CCHS Network

Org chart

Teams

Offices

CCHS Network

Org chart

Teams

Offices

Related companies