Who are we?
Our purpose is to ‘transform patient outcomes’ in Inflammatory Bowel Disease (IBD) and be ‘instrumental in finding a cure’. 

A small group of passionate physicians in the field of IBD, from Australia and the UK, began this journey in 2011. Partnering with with a software development company, we developed and run a scalable cloud-based software tool (Crohn’s Colitis Care – CCCare) on Microsoft Azure. This knowledge-based, physical “asset” (CCCare) enables ongoing collection, refresh and use of patient data for research into IBD.

How does it work?
CCCare is an integrated tool which encompasses: 
• a patient clinical system, with privacy safeguards, through which individual care is managed and ongoing specific structured patient data is captured; 

• a clinical quality registry, where de-identified longitudinal data is captured and can be interrogated to provide specific and targeted insights (and can be married with genetic and bio-markers from stored samples); and

• a research database, where extended data with ethics-approved focus resides

Independent feedback from external organisations in the IBD space have confirmed that our data is deep, focused, and constantly refreshed through the patient/clinician interaction - in a way which many IBD databases cannot. 

Partnership opportunities

We have recently developed a new 3-year strategy which transforms our ambition and trajectory — moving from a primary focus on the development of our technology core, to placing the majority of our effort into research.  

We are in ongoing conversations to expand our partner base and welcome additional discussions from organisations who share our vision to transform patient outcomes and be instrumental in finding a cure in IBD.

Crohn's Colitis Cure

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