Cure ALD is committed to advancing a cure for Adrenoleukodystrophy (ALD) by supporting research and empowering families to take action together—building community, driving hope, and creating better outcomes for all those affected by this rare genetic disease.

Why now?
X-linked Adrenoleukodystrophy (ALD) affects 1 in 17,000 people.  A mutation in the ABCD1 gene impacts the body's ability to break down very long chain fatty acids (VLCFAs).  The toxic build-up of VLCFAs can damage the brain, spinal cord, and adrenal glands with varying severity. 

Young boys face the most devastating form—childhood cerebral ALD—which can be fatal without early intervention. While treatment options exist for some manifestations, there is no cure or preventative treatments. 

Since there is limited funding for rare disease research, funding for ALD research is heavily reliant on donations. Cure ALD's fundraising efforts are vital to ensuring that research for ALD continues.

Cure ALD

Terry Wiener

This department focuses on strategic direction and governance at the highest level of the organization.

Cure ALD

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