HHT afflicts the lives of more than 1.4 million people worldwide with most unaware that "nosebleeds in the family"​ can be something much more and potentially life threatening. The HHT Foundation is the only patient advocacy organization in the world solely focused on individuals living with this disease. You can be sure that your investment in the HHT Foundation will go to the highest-return initiatives that can improve life of HHT patients today and in future generations by:

- Providing "seed money"​ for research on promising therapies
- Improving access to care by adding more HHT Treatment Centers
- Building a registry of HHT patients to find which treatments work best
- Standardizing HHT treatments to ensure patients get global best practices

Charity

Health Care

Non Profit

Cure HHT

Cure HHT's headquarters in Monkton, MD, United States

Marianne Sergott Clancy

Sara Palmer

The Operations and Support team at Cure HHT plays a crucial role in enhancing the organization's efficacy and outreach. They manage business processes, maintain the Salesforce database for patient resources and treatments, oversee patient education initiatives, and support clinical trials. This team ensures streamlined operations and effective communication, ultimately improving care for individuals affected by HHT.

Operations and Support

The Research and Grants Team at Cure HHT is dedicated to advancing the understanding and treatment of Hereditary Hemorrhagic Telangiectasia (HHT) through the coordination of research initiatives and funding opportunities. This team works to secure grants, manage research projects, and establish collaborations that facilitate innovative therapies and improve patient care. By building a comprehensive registry of HHT patients and promoting best treatment practices globally, they aim to enhance the quality of life for individuals affected by this condition.

Research and Grants Team

The Donor Relations and Community Engagement team at Cure HHT is dedicated to fostering strong relationships with donors and community stakeholders to raise awareness and support for HHT initiatives. They engage in outreach activities, coordinate fundraising campaigns, and build strategic partnerships to enhance the foundation's impact. By connecting with patients, families, and healthcare providers, this team aims to promote understanding of HHT and drive resources towards effective research and treatment solutions.

Donor Relations and Community Engagement

The Leadership Team at Cure HHT is responsible for guiding the organization's strategic vision and operations to improve the lives of individuals affected by HHT. This team works on securing funding for research initiatives, expanding access to specialized care, and developing standard practices for HHT treatments, while also fostering collaborations that empower patients and their families. Through their leadership, they ensure that the foundation effectively addresses the critical needs of the HHT community.

Cure HHT

Org chart

Teams

Operations and Support

Research and Grants Team

Donor Relations and Community Engagement

Leadership Team

Offices

Cure HHT

Org chart

Teams

Operations and Support

Research and Grants Team

Donor Relations and Community Engagement

Leadership Team

Offices

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