Duchenne UK is an ambitious and highly focused charity with a clear vision: to fund and accelerate effective treatments for Duchenne muscular dystrophy (DMD). 

Duchenne muscular dystrophy is a devastating muscle wasting disease and is the most common genetic killer of children worldwide. 

In the UK there are around 2,500 people affected and around 300,000 worldwide. It is usually diagnosed between the ages of 3 - 6 and mainly affects boys. Children with DMD gradually lose muscle strength and mobility, and have a limited life-expectancy. But thanks to recent breakthroughs, we believe we can save them. We are advancing and accelerating medical research, as well as supporting families affected by the disease and ensuring they receive the best possible care.

Duchenne UK

Emily Reuben OBE

This department oversees organizational policies and ensures strategic direction through board oversight.

Governance Board

This department focuses on strategies and initiatives to drive revenue and enhance financial growth.

Income Generation

This department handles internal and external communications while organizing and managing events.

Duchenne UK

Org chart

Teams

Governance Board

Income Generation

Communications and Events

Offices