Friedreich's Ataxia Research Alliance (FARA)
Kyle Bryant has extensive experience in advocacy and engineering, currently serving as the Spokesperson and Director of Ride Ataxia for the Friedreich's Ataxia Research Alliance (FARA) since October 2009. Notable accomplishments include completing a 2,500-mile bike ride from San Diego to Memphis in 2007 and leading Team FARA in the Race Across America, which covered 3,000 miles in just over eight days. Additionally, Kyle serves on the Board of Directors for De:terminence, Inc. since March 2018 and held the position of Project Engineer at Brown and Caldwell from April 2005 to September 2009. Kyle earned a Bachelor’s degree in Civil and Environmental Engineering from the University of California, Davis, in 2005.
Friedreich's Ataxia Research Alliance (FARA)
The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances. FARA was founded in September 1998 by a group of patient families and three of the world’s leading FA scientists — Drs. Rob Wilson, Bronya Keats, and Massimo Pandolfo. It was staffed and managed as an all volunteer organization until late 2005. FARA's leadership and numerous patient families and friends have raised critical funds over the years to support FA research. Thanks to the brilliant and committed efforts of many FA scientists, we now understand the cause of FA and specific mechanisms leading to damage in FA patients. These understandings allow for more targeted approaches to treatment which are currently being developed for clinical trials.