The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances.

FARA was founded in September 1998 by a group of patient families and three of the world’s leading FA scientists — Drs. Rob Wilson, Bronya Keats, and Massimo Pandolfo. It was staffed and managed as an all volunteer organization until late 2005. FARA's leadership and numerous patient families and friends have raised critical funds over the years to support FA research. Thanks to the brilliant and committed efforts of many FA scientists, we now understand the cause of FA and specific mechanisms leading to damage in FA patients. These understandings allow for more targeted approaches to treatment which are currently being developed for clinical trials.

Clinical Trials

Health Care

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Research

Friedreich's Ataxia Research Alliance (FARA)

Friedreich's Ataxia Research Alliance (FARA)'s headquarters in Downingtown, PA, United States

The Directors Team at FARA oversees strategic planning and organizational leadership, ensuring the alignment of research and funding initiatives with the organization's mission to cure Friedreich’s ataxia. They provide governance, set priorities for research grants, foster partnerships with scientific and pharmaceutical communities, coordinate global initiatives, and represent the organization in public and professional forums.

Directors Team

The Communications and Social Media Team at FARA is responsible for creating, managing, and disseminating information that raises awareness about Friedreich’s ataxia and the organization’s mission. This team develops strategic communication plans, manages social media channels, creates content to engage with the community, and coordinates public relations efforts to support fundraising and research initiatives. They also serve as the primary point of contact for media inquiries and work to amplify the organization’s message to both the public and scientific communities.

Communications and Social Media Team

The Leadership Team at the Friedreich's Ataxia Research Alliance (FARA) is responsible for setting the organization's strategic direction, overseeing research initiatives, and ensuring effective fundraising and communication efforts. This team, comprised of senior executives including the President, Chief Executive Officer, Chief Scientific Officer, and Vice Presidents of Fundraising and Communications, aligns FARA's objectives with its mission to cure Friedreich’s ataxia through dedicated research and collaboration.

Leadership Team

The Operations and Administrative Support team at Friedreich's Ataxia Research Alliance (FARA) ensures seamless organizational functioning by handling administrative tasks, managing clinical operations, and providing graphic design support. The team supports FARA's mission by facilitating communication, organizing events, ensuring compliance in clinical trials, and maintaining visual consistency across FARA's various platforms.

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Communications and Social Media Team

Leadership Team

Operations and Administrative Support