The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

Our Vision: A world free of the suffering caused by Facioscapulohumeral Muscular Dystrophy (FSHD)
 
Our Mission: Find treatments and a cure for FSHD while empowering our families
 
Our Strategies:
- Accelerate the development of treatments and a cure for FSHD
- Increase, engage, and empower our stakeholders
- Aggressively leverage and expand resources to support our Mission
 
Our Core Values: Research | Community | Urgency

FSHD Society

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