Our Mission
The mission of the Foundation is to unite and support in any possible the patients of the genetic heart disease Hypertrophic Cardiomyopathy (abbreviated as HCM), located in the European Union, and their relatives by:
1. Working together with the competent local and European authorities to improve the healthcare of HCM patients and protect their interests;
2. Assisting these authorities in the adoption of legislation to improve the standard of living of these patients;
3. Supporting research into new ways of diagnosing and treating the disease;
4. Helping to raise public awareness of HCM and its associated comorbidities and consequences for the well-being of patients and their close people by the production of information materials, events, etc.;
5. Working with public and private companies to create innovative solutions related to the early detection, diagnosis, prevention and treatment of HCM, as well as the prevention of sudden cardiac arrest.

Our Vision
Our vision is to achieve a much better outcome of HCM in patients in the European Union, including prolonged life expectancy, better quality of life, improved understanding of genetic factors, and access to the most modern medicines and treatments, including psychological care. We dream of the day when HCM will be a routinely treatable or even completely eradicated disease. 


HCM Patient Foundation

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Teams

Offices

HCM Patient Foundation

Org chart

Teams

Offices

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