The International Limb Differences Network (ILDN) is a global community of clinicians, researchers, and patient partners committed to advancing care and knowledge for children and adolescents with limb differences. 

At present, two major studies conducted under the ILDN are the International Limb Differences Registry (ILDR) and the LIMB-Q Kids. ILDR is a global registry that captures the full spectrum of diagnoses leading to limb differences. LIMB-Q Kids is a validated, internationally developed patient reported outcome measure that assesses appearance, health related quality of life, and symptoms in children with lower limb differences. By pairing standardized clinical data with outcomes that reflect what matters most to patients, ILDN is working towards creating a shared foundation for harmonized protocols, multi-centre research, and continuous quality improvement initiatives. This integrated approach supports meaningful comparisons across sites and countries and accelerates progress towards patient centered, evidence-based care worldwide.


International Limb Differences Network

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International Limb Differences Network

Org chart

Teams

Offices

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