Patient Worthy® provides current and continuous coverage of rare disease patient experiences, news, and events, through an online platform and broad social media presence. Through education, awareness and a touch of humor, Patient Worthy helps patients, caregivers and support persons by providing relevant, often inspirational stories. 

We believe rare disease patients are people, not a diagnosis. To improve the quality of life of those affected by rare disease, we encourage collaboration among patient organizations, scientists, pharmaceutical companies and more. 

Here at Patient Worthy, if we are not learning to live with a chronic illness or rare disease ourselves, we are loving or working with someone who is. It is through this perspective, research and our passion for rare disease awareness that we bring you Rare Patient News. Well Done.®

Contacts Us! @PatientWorthy or Contribute@patientworthy.com

Patient Worthy

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