We are a private practice dedicated to improving access to clinical trials for rare disease patients.


Health Care

Health Data

Research

Rare Disease Research

Han C. Phan

Meg Hudspeth

Edward Smith

Cindy Ferrante

Lynette Slovensky

Emily Murray

Samata Kamireddy

Chelsea Rock

The Clinical Research Team at Rare Disease Research is responsible for designing, implementing, and overseeing clinical trials specific to rare diseases. This multidisciplinary team, comprised of coordinators, principal investigators across various specialties, and research specialists, works collaboratively to ensure patient safety, compliance with regulatory standards, and effective data collection. Their mission is to enhance access for patients to innovative treatments and contribute to advancements in the field of rare diseases.

Clinical Research Team

The Leadership Team at Rare Disease Research is responsible for setting the strategic direction of the organization, overseeing the development and execution of clinical trials, and ensuring that research initiatives align with the company’s mission to enhance access for rare disease patients. Comprising experts in various medical fields, the team fosters collaboration and innovation to drive advancements in rare disease treatments while maintaining operational excellence.

Leadership Team

The Regulatory Affairs Team at Rare Disease Research is responsible for navigating the complex landscape of regulatory requirements to ensure compliance for clinical trials involving rare diseases. This team collaborates with government agencies, manages submissions for investigational new drugs, and provides strategic guidance to facilitate patient access to innovative therapies. Their expertise is crucial in advocating for the needs of rare disease patients throughout the regulatory process.

Rare Disease Research

Org chart

Teams

Clinical Research Team

Leadership Team

Regulatory Affairs Team

Offices

Rare Disease Research

Org chart

Teams

Clinical Research Team

Leadership Team

Regulatory Affairs Team

Offices

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