This national foundation is the first of its kind in Australia, providing a unique and much needed spotlight on Tay-Sachs and Sandhoff Diseases by supporting those affected and their families, raising awareness for funding research to improve clinical care and finding a cure for patients with these devastating conditions.
Tay-Sachs and Sandhoff Diseases are rare genetic diseases and those affected suffer a relentless deterioration of mental and physical abilities, and in most cases will not live past 4 years of age. 
There is no current cure

Rare Find Foundation

Anna Pak Poy

This department oversees the strategic direction and governance of the organization.

Rare Find Foundation

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Executive Leadership

Offices

Rare Find Foundation

Org chart

Teams

Executive Leadership

Offices

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