Rare4Schools is a compassion first organisation that aims to bring an equality in access to learning providing schools with support that enables them to better meet the needs of all children. In 2025 the World Health Assembly 78 passed a resolution declaring rare diseases a global emergency.  While we welcome governments focus on health the WHO includes social and mental health as key components in their definition of health.  As such schooling should form any part of the discussion in meeting the obligations of governments in addressing this global emergency.

Our 4 pathways to success

A Framework - provides a structure for schools and families to support children in achieving their best.

A Toolkit - we are developing a toolkit to provide continual support to schools and families to put the framework into practise.

A Hub - our hub will provide links to other organisations and blogs for parents to support engagement with schools.

A Voice - we will advocate for families with parliamentarians, the DfE and school systems to give families a voice.

Rare4Schools

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