RareDNA Foundation is dedicated to improving outcomes for individuals and families affected by rare DNA heart mutations by advancing awareness, access, and action around genetic testing. We increase awareness among medical professionals and the public, provide education and resources on diagnosis and treatment, support scientific and clinical research, and advocate for faster diagnostic pathways and expanded newborn genetic screening—giving families the knowledge and care they need when every moment matters.

RareDNA Foundation

Org chart

Teams

Offices