Raregivers
Stacey Bailey currently serves as Vice President of Science Communications at the Chan Zuckerberg Initiative, beginning in September 2024. Bailey has been a Board Member at Raregivers since January 2019, contributing to a global network that offers emotional support for caregivers and patients in the rare disease community. Additional roles include being an Executive Committee Board Member at Page Up and previously serving as Director of Communications at The Kavli Foundation, where strategic communications were managed for various scientific endeavors. Past experience includes communications roles at the Gordon and Betty Moore Foundation, inVentiv Health Communications, Ketchum, and The Dolphin Group, providing extensive expertise in brand strategies and client management. Bailey holds a Bachelor of Arts in History from UCLA, as well as education from Universita di Siena and Stanford University.
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Raregivers
Raregivers™ is a global network that delivers emotional support to caregivers, patients and professionals in rare, chronic and complex disease communities. We deliver daily compassion and relief to individuals who feel isolated and overwhelmed. Our organization is singularly focused on providing necessary mental health and wellness services to the 1 in 10 families worldwide living with rare, chronic or complex diseases - from sustainable psychosocial training and transformative retreats to a connective peer-to-peer multilingual network. Raregivers currently supports over 22,000 families across 33 countries, with a goal to connect and educate 3.5 million Raregivers™ by 2026.