RASopathies Network USA is a research advocacy organization. We aim to advance research on the Ras-related genetic syndromes by bringing together clinicians, researchers, and families. By facilitating collaboration, we will enhance collective knowledge and accelerate care and treatment for individuals with a RASopathy syndrome.

RASopathies are a group of congenital genetic syndromes that are collectively as common as 1:1000. Syndromes include: cardio-facio-cutaneous (CFC), Costello (CS), Neurofibromatosis type 1 (NF1), and Noonan (NS) and Noonan-like syndromes.

RASopathies Network USA

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