Sam’s Superheroes Foundation is a registered charity (1210458) and was founded in memory of my son, Sam Liew, who died age 5 in 2021 from Febrile Infection Related Epilepsy Syndrome (FIRES). We fund animal assisted therapies and creative activities, create awareness of FIRES, fund FIRES research and provide grants to families affected by FIRES. 

A few of the activities we have recently funded for young people include: animal assisted grief workshops, summer horse activity programmes, supplied over 1,800 children's hospital creative toolkits, funded activities for the play therapist team at Nottingham’s QMC Hospital and provided grants for two UK FIRES families. 

Daisy, Sam’s black labrador, plays a leading role in our charity through her transformative therapy dog work with children. She visits schools and local organisations sprinkling Sam's love and kindness in the world where ever she goes. 

FIRES, or Febrile Infection Related Epilepsy Syndrome, is a rare and catastrophic condition that affects healthy children with no prior history of epilepsy or seizures. The seizures begin suddenly and explosively following a simple febrile infection or virus, rapidly progressing into relentless seizure activity that is exceptionally difficult to stop. Children often remain in an induced coma for weeks to months, with life-changing impacts. One in five children die during the acute stage, and those who survive often suffer significant neurological disabilities and life-long epilepsy. 

It's not yet understood what causes FIRES, and there are no known effective treatments. FIRES is desperately under-researched, with the first and only UK research starting in 2023. 

We are currently on a mission to raise £50,000 for FIRES children's medical research and work alongside a fantastic team of Great Ormond Street hospital doctors to raise awareness of FIRES and the need for more research. 

#FindACureForFIRES
#FebrileInfectionRelatedEpilepsySyndrome
#FIRES
#TherapyDog
#Epilepsy



Sam's Superheroes Foundation

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Sam's Superheroes Foundation

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