The National Scleroderma Foundation is a 501(c)(3) nonprofit organization founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

Supported by a network of thousands of individuals across the United States, the Foundation helps those living with scleroderma by providing support and education at the same time that it funds peer-reviewed scleroderma research. Since its founding, the Foundation has committed over $30 Million to discover the cause, understand the mechanism, and overcome scleroderma forever. 

The Foundation is home to the National Scleroderma Conference—the only educational program of its kind and scope in the U.S.—which provides access to leading scleroderma experts and up-to-date information while serving as the central meeting ground for the scleroderma community.  In addition, the Foundation's Stepping Out to Cure Scleroderma walks are the country's premier awareness and fundraising events which are organized by the Foundation’s local chapters and take place throughout the year at multiple locations and virtually across the country.

The Foundation is led by a dedicated, volunteer Board of Directors that exercises its fiduciary responsibilities, an extraordinary, volunteer Medical & Scientific Advisory Board comprised of world-renowned physicians and scientists, and an exemplary professional staff committed to advancing its mission through the organization's cultural values of care, connection, diversity, integrity, meaningful work, and trust. 

Charity

Health Care

Non Profit

National Scleroderma Foundation

National Scleroderma Foundation's headquarters in Danvers, MA, United States

This department focuses on managing and enhancing the effectiveness of chapter-related initiatives and programs.

Chapter Operations

This department focuses on supporting and promoting awareness for individuals affected by scleroderma through outreach and community initiatives.

Scleroderma Advocacy

This department oversees educational initiatives and communication strategies within the organization.

Education and Communications

This department coordinates and oversees various fundraising and special events to enhance engagement and support for the organization.

Events Management

This department sets the strategic direction and oversees the organization's overall operations.

Executive Leadership

This department oversees strategic direction and governance within the organization.

People (2)

Jobs (0)

Other teams

Scleroderma Advocacy

Education and Communications

Events Management

Executive Leadership

Leadership Division