Angelman Syndrome Foundation
Alisa Tammaro, a Bachelor's degree holder in Hotel, Motel, and Restaurant Management from Widener University, has a diverse professional background. Starting as a Training Coordinator at McGettigan Partners and advancing to roles like Marketing Associate at Arbour Square of Harleysville, Alisa currently serves as Special Events Director at Angelman Syndrome Foundation and also works as an Independent Certified Optavia Coach at Optavia. Notably, Alisa founded and ran The Playful Chef, a company offering cooking parties and classes for children. In the past, Alisa held positions such as Community Outreach Coordinator, Family Engagement Officer, and Philanthropy Officer at For Pete's Sake Cancer Respite Foundation.
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Angelman Syndrome Foundation
Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. AS is often misdiagnosed as cerebral palsy or autism due to lack of awareness. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome will require life-long care. Because of its genetic relationship to autism and other disorders, many researchers believe that curing Angelman syndrome will lead to cures for similar disorders. Angelman syndrome research is on the cusp of potential treatments to reverse the debilitating symptoms of Angelman syndrome. The Angelman Syndrome Foundation raises funds for Angelman syndrome research and supports families. Use this website to keep abreast of current information regarding research, education, general information and therapies for Angelman syndrome. If you have any questions or would like additional information please email the ASF at info@angelman.org.