Amy Brin

Amy E. Brin, MSN, MA, PCNS-BC, has been working on behalf of children/youth living with special needs and their families for over two decades. Since 2015 Brin has been serving as the Executive Director and CEO of the Child Neurology Foundation, whose mission is to serve as a collaborative center of education and support for caregivers and their children with neurologic conditions and facilitate connection with medical professionals who care for them. Through her leadership, CNF has experienced consistent and unprecedented growth in strategic partnerships, programming, and overall operations.

Prior to joining CNF, Brin led the development and provision of care in various tertiary, ambulatory and community-based pediatric and perinatal palliative and hospice programs. She served as a national consultant, building systems of care for children and youth living with special healthcare needs, with a specific focus on program development for complex, chronic care models of service. Brin’s specialization is in pediatrics, medical home core components, hospice and palliative medicine throughout the care continuum, home health, transitions of care, care coordination and case management. Brin is a Board-certified pediatric advanced practice nurse.

Throughout Brin’s career, she has interwoven both her hands-on clinical expertise and her executive experience, always with the goal of improving the lives of children and their families. Her success is built on her innate ability to form trusted and collaborative partnerships, take calculated strategic risks, and her belief in personal transparency and candid conversations.

Brin is a published author, award winning speaker, and trusted convener, which has earned her international recognition as a recipient of the Platinum Facilitation Impact Award (International Facilitators Association), as well as being elected Chair of the Epilepsy Leadership Council (a consortium of nearly 60 epilepsy advocates advancing a collaborative research and policy agenda) – and in 2022, Brin was nominated to the NIH- National Advisory Committee on Neurologic Disorders and Stroke. Brin is a Key Opinion Leader within the neurology community and is routinely asked to engage in cross-cutting national dialogue on topics such as access to critical therapies, regulatory process reform, patient-centricity within clinical care, and various ‘resets’ emerging in a post-COVID world, including telehealth and a return to school for children/ youth with special health care needs.