CMT Research Foundation
Erich Fasnacht is an accomplished professional with experience in various leadership roles within nonprofit organizations. Currently serving as Chief Operating Officer at CMT Research Foundation, Erich has a proven track record of successfully leading fundraising initiatives and scaling organizational capabilities. Prior to this role, Erich held positions such as Vice President of Marketing/Development at Multiple Sclerosis Association of America and Chief Development Officer at The ALS Association, where Erich excelled in implementing fundraising strategies and achieving significant growth. With a Master of Business Administration degree from Emory University, Erich's expertise in marketing, development, and strategic planning has been instrumental in driving organizational success.
CMT Research Foundation
The CMT Research Foundation has one single focus: deliver treatments and cures for CMT. Led by two experts in Charcot-Marie-Tooth (CMT) who have over 20 years of collective experience working with CMT researchers, the CMTRF supports the most promising and effective research aimed at drug delivery. By developing strategic partnerships with researchers, pharmaceutical and biotechnology professionals, as well as a national network of CMT patients, the CMT Research Foundation is instrumental in achieving successful outcomes in CMT research for treatment and cure delivery. CMT is a progressive genetic nerve disease and can lead to severe disability or even death. CMT has over 90 known genetic causes and can be passed down in multiple generations. Onset can be at birth or later in life and is characterized by loss of muscles and sensation in the feet, hands, legs and arms. Nearly three million people of every age, race and ethnicity are living with CMT. Currently there is no cure for CMT; and there are not any effective treatments. CMT is a genetic disease with a high unmet need, giving pharmaceutical companies incentives to deliver clinical trials and eventually, treatments and cures for CMT. With your help, the CMT Research Foundation will not stop until cures for all types of CMT have been delivered.