CSNK2A1 Foundation
Chantal van Gellekom currently serves as a Regional Ambassador for the CSNK2A1 Foundation since April 2023, supporting individuals in the Netherlands diagnosed with OCNDS. In addition, Chantal has been working as an ICT Manager at Gemeente Leeuwarden since February 2022, overseeing a team responsible for various IT services. Previous experience includes roles at Veiligheidsregio Noord-Holland Noord, where responsibilities spanned from head of information management to ICT coordination, and at Gemeente Hoorn as head of automation. Chantal's career includes consultancy positions at Ordina and NederConsult, as well as foundational roles at the Belastingdienst AutomatiseringsCentrum and Panfox. Chantal holds several degrees in Public Administration from Leiden University and Erasmus University Rotterdam, alongside education from NCOI and Open Universiteit.
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CSNK2A1 Foundation
CSNK2A1 Foundation is focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives. CSNK2A1 Foundation is operated and funded through a committed team of volunteers, advocates and researchers. We aim to accomplish our mission by: * financing and encouraging meaningful research, * providing support to individuals affected and those that care for and love them, * promoting awareness, * educating patients, caregivers and health professionals and * advocating for issues important to our community. Okur-Chung Neurodevelopmental Syndrome is a rare genetic disorder first identified in 2016. OCNDS is caused by a mutation in the CSNK2A1 gene which is located on Chromosome 20. The gene CSNK2A1 creates a protein called CK2 which plays a crucial role in development. A mutation in this gene disrupts typical development. CSNK2A1 Foundation is a 501(c)(3) non-profit organization. EIN #82-4220939