Cystic Fibrosis Canada / Fibrose kystique Canada
Stephanie Cheng is an experienced professional in the fields of statistics and health research, currently serving as the Director of Registry at Cystic Fibrosis Canada since May 2019. Prior to this role, Stephanie held positions at the Institute for Clinical Evaluative Sciences as a Senior Research Analyst and at the Canadian Institute for Health Information as an Analyst, contributing to projects such as the Canadian Joint Replacement Registry. Additional experience includes statistical analysis and project-based roles within various health organizations and research institutions, implementing methodologies and conducting data analysis for significant health outcomes. Stephanie holds a Master of Science in Statistics from The University of British Columbia and a Bachelor of Mathematics with Double Honours in Actuarial Science and Statistics from the University of Waterloo.
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Cystic Fibrosis Canada / Fibrose kystique Canada
Cystic Fibrosis Canada is a national not-for-profit corporation and one of the world’s top three charitable organizations committed to improving and lengthening the lives of people living with cystic fibrosis. In our 60 year history, we have advanced cystic fibrosis research and care that has more than doubled life expectancy for Canadians living with cystic fibrosis. We’ve contributed to the global body of CF knowledge, funding research achievements such as mapping the gene that causes cystic fibrosis, in 1989. And we’ve advanced access to life-changing CF medicines in Canada through relentless advocacy and government relations work. Today, CF Canada is a leading organization with a central role engaging people living with cystic fibrosis, parents and caregivers, volunteers, researchers and healthcare professionals, government and donors. We work together to change lives through treatments, research, information and support. * Fibrose kystique Canada sommes un organisme de bienfaisance national à but non lucratif et l’un des trois principaux organismes de bienfaisance au monde voués à l’amélioration et au prolongement de la vie des personnes fibro-kystiques. Au cours de nos 60 ans d’histoire, nos avancées dans les domaines de la recherche et des soins ont plus que doublé l’espérance de vie des Canadiens fibro-kystiques. Nous avons contribué à l’ensemble des connaissances mondiales sur la FK et financé des réalisations en recherche, notamment la cartographie du gène responsable de la fibrose kystique en 1989. Nous avons également fait progresser l’accès aux médicaments révolutionnaires contre la FK au Canada, grâce à notre travail constant de défense des droits et de relations avec les gouvernements. Aujourd’hui, FK Canada est un leader quant à l’engagement des personnes touchées par la maladie : celles qui vivent avec la maladie, les parents, les aidants, les bénévoles, les chercheurs et les professionnels de la santé, les gouvernements et les donateu