Emily's Entourage
Mariah Oakley is the Senior Director of Operations at Emily's Entourage, where she leads systems, fundraising, and operations staff to implement day-to-day functions and long-term strategic initiatives. Mariah also oversaw all human resources, compliance, and financial functions in her previous role as a Director of Operations at a different organization. Mariah has a diverse background in program development, health education, and strategic planning, with experience working in various sectors including healthcare, education, and non-profit organizations. With a Master's in Public Health and a background in child development, Mariah has a strong foundation in promoting physical, emotional, and social health for individuals and communities.
This person is not in any teams
Emily's Entourage
Emily's Entourage (EE) is an innovative 501(c)3 foundation that funds research for new treatments and a cure for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from existing mutation-targeted therapies, including those with nonsense mutations. CF is a fatal genetic disease primarily affecting the lungs and digestive system. Founded by Emily Kramer-Golinkoff, a woman with advanced stage CF, and her devoted friends and family, the organization has been featured in national media, including the New York Times, STAT, CNN, People, and more. Since 2011, Emily’s Entourage has awarded millions of dollars in research grants, launched a now-acquired CF gene therapy company, developed a patient registry and clinical trial matchmaking program to accelerate clinical trial recruitment, and led worldwide efforts to drive high-impact research and drug development. The organization’s work is particularly critical now as revolutionary breakthroughs are available for roughly 90% of the CF population, but those in the outlying 10% that unfortunately do not benefit from these major advances. The work of EE is laser-focused on changing that — and doing it fast, so nobody is left behind