Danielle Drachmann is an award-winning rare disease advocate and the Executive Director at Ketotic Hypoglycemia International, where they facilitate patient-driven research projects. Currently, Danielle serves as a Senior Patient Partnering Manager at Evidera, collaborating with patients and leading medical experts in patient-centered research. They were honored with the 2022 Young Patient Advocate Award at the Black Pearl Awards hosted by EURORDIS. Additionally, Danielle has contributed to various organizations, including the European Medicines Agency and EURORDIS, shaping policy and promoting engagement between patients and stakeholders in healthcare and research.
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