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Vanessa Tenembaum

Vanessa Tenembaum serves as the Chief Executive Officer and Executive Director of the Jeffrey Modell Foundation since February 2011, where the focus is on advancing the diagnosis and treatment of Primary Immunodeficiency Diseases. Prior to this role, Vanessa Tenembaum held the position of Director of Marketing, PR, and Interactive Marketing at Simmons Jewelry Co. from January 2006 to February 2011 and previously contributed to the Jeffrey Modell Foundation as Marketing, Events, and Advertising Director from March 2002 to December 2005. Vanessa Tenembaum earned a BA in Spanish and Education from the University of Massachusetts Amherst, completing studies there from 1995 to 1999, following education at The Wheatley School from 1990 to 1995.

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New York, United States

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Jeffrey Modell Foundation

The Jeffrey Modell Foundation (JMF) is a global nonprofit dedicated to early diagnosis, meaningful treatments, and ultimately, cures for Primary Immunodeficiency (PI) through awareness, advocacy, and research. Vicki and Fred Modell established JMF in 1987 in memory of their son, Jeffrey, who died at the age of 15 due to complications from Primary Immunodeficiency (PI). PIs are a group of more than 450 genetic disorders of the immune system that are chronic, serious, and often fatal. PIs affect an estimated 10 million people worldwide. To date, JMF has established a global centers network including over 900 physicians at 402 medical institutions in 87 countries, funded millions of dollars in innovative research for treatments and cures, implemented newborn screening programs in the United States and abroad, and spearheaded a genetic sequencing initiative called Jeffrey's Insights with a goal of 10,000 patients sequenced. Additionally, JMF's awareness-raising activities have reached millions around the world, encouraging early diagnosis and improved quality of life. Join our mission to #CurePI worldwide. Learn more on our website at https://www.info4pi.org.


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