National Foundation for Ectodermal Dysplasias
Virginia Higgins is an experienced professional in ministry and content creation, currently serving as an Assistant Pastor at Expansion Church since December 2021. Additionally, Virginia has been the Owner and Content Creator for thatbaldchick.com since March 2008 and leads the Women's Ministry Team at Expansion Church since December 2013. Virginia holds the position of Family Liaison at the National Foundation for Ectodermal Dysplasias since 2012. Educational qualifications include a Bachelor of Science in Christian Ministries from St. Louis Christian College (2005-2007) and an Associate of Applied Science in Nursing from Lewis and Clark Community College (1994-1997).
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National Foundation for Ectodermal Dysplasias
The National Foundation for Ectodermal Dysplasias (NFED) is the worldwide expert on ectodermal dysplasias and the only advocacy organization in the United States dedicated to those living with these disorders. EDUCATION We offer a range of educational resources and events to meet the changing needs of those affected by the different types of ectodermal dysplasias. And, by connecting you with other families like yours, we give you the opportunity to learn from one another. SUPPORT We provide lifelong support for individuals and families affected by ectodermal dysplasias, including: - Offering personalized service and support to families affected by ectodermal dysplasias, particularly those with recently diagnosed children - Helping families understand currently available treatment options - Partnering with doctors and dentists to ensure that the most effective care is being offered - Working with families to find appropriate financial assistance - Helping secure insurance coverage for dental treatment related to ectodermal dysplasias RESEARCH We encourage and support medical, dental, genetic and other ectodermal dysplasia–related research to improve the health and quality of life of everyone living with ectodermal dysplasia. Our ultimate goal is to find a cure. Sign Up for Email - http://eepurl.com/JIjL