Our goal is to support individuals and families living with (Phenylketonuria) PKU across the UK.

We do this through our various activities:
 
- Education and Research: We work closely with a Medical Advisory Panel of expert clinicians and retain a specialist dietitian. We provide reliable dietary guidance, medical information and support research.

- Support: We work to assist individuals and families through all stages of their lives. We provide a telephone helpline, online advice and a colour magazine to our members.

- Community: We create a supporting and caring community for people affected by PKU through our annual family conference, regional events, youth activities and social media.

- Advocacy: We are the voice of people living with PKU – with government, public, industry bodies and the media to represent the issues that matter to people living with PKU.

NSPKU

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