Rare Disease Data Trust partners with community provider health systems to execute patient-centric data monetization, executing lost rare disease patient analytics, through commercially sponsored (by bio-pharma) targeted searches for undiagnosed rare disease patients. Accelerating the discovery and diagnosis of targeted rare disease patients and rescuing them from their diagnostic odysseys.

Hospital

Rare Disease Data Trust

Rare Disease Data Trust's headquarters in Nashville, TN, United States

David S. Connor

J Mark Tumblin

David Slosky

Rhys Williams

Mark Tumblin

Kerry Hart

Brock F. Weathers

Bruce Brandes

Mark Smith

Jeff Seraphine

Jeff Patton

The Executive and Advisory team at Rare Disease Data Trust is responsible for steering the company's strategic direction, making high-level decisions, and providing expert guidance. This team combines leadership with specialized knowledge to drive efforts in patient-centric data monetization and rare disease patient analytics, ensuring the successful execution of commercial partnerships and operational excellence.

Executive and Advisory

The Leadership Team at Rare Disease Data Trust oversees the strategic direction and operational management of the organization. This team is responsible for fostering partnerships with health systems, driving innovations in patient-centric data monetization, and guiding the data science initiatives that enable the identification of undiagnosed rare disease patients. By leveraging their expertise in technology and data analysis, they aim to enhance patient outcomes and expedite the diagnostic process for rare diseases.

Rare Disease Data Trust

Org chart

Board & advisors

Teams

Executive and Advisory

Leadership Team

Offices

Rare Disease Data Trust

Org chart

Board & advisors

Teams

Executive and Advisory

Leadership Team

Offices

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