Rare Genomics Institute (RG) was founded in 2011 to fill the health care gap for undiagnosed rare disease patients and support research in rare diseases.

Biotechnology

Rare Genomics Institute

Rare Genomics Institute's headquarters in Downey, CA, United States

Jimmy Lin

Ray Chan

Eva Wu

David Lerner

Arvin Gouw

Imran Babar

Mark Banuelos

Ruma Das

The Leadership Team at Rare Genomics Institute is responsible for guiding the organization's strategic direction and overseeing its operations to effectively address the needs of patients with rare diseases. This team collaborates across various functions, including research, patient services, communications, and talent acquisition, to enhance the institute's research capabilities and improve patient outcomes. Their collective expertise ensures alignment in goals and initiatives that advance the mission of providing support and solutions for undiagnosed rare disease patients.

Leadership Team

The Research and Development team at Rare Genomics Institute focuses on advancing scientific understanding and treatment options for undiagnosed rare diseases. They conduct cutting-edge research, develop innovative diagnostic tools, and collaborate with medical professionals and researchers to improve patient outcomes.

Research and Development

The Communications and Media team at Rare Genomics Institute is responsible for crafting and disseminating the organization's message across various channels. This includes managing public relations, digital media content, and strategic partnerships to raise awareness and support for rare disease research and patient advocacy.

Communications and Media

The Design and Development team at Rare Genomics Institute is responsible for creating and enhancing user-friendly, visually appealing web interfaces to improve user experience. This team focuses on ensuring seamless navigation and accessibility of the Institute's online platforms, which support undiagnosed rare disease patients and research initiatives.

Design and Development

This department focuses on creating and analyzing medical and scientific content for patient research and education.

Medical Content Development

This department focuses on providing support to patients while ensuring compliance with legal standards and regulations.

Rare Genomics Institute

Org chart

Teams

Leadership Team

Research and Development

Communications and Media

Design and Development

Medical Content Development

Patient Advocacy and Legal

Offices

Rare Genomics Institute

Org chart

Teams

Leadership Team

Research and Development

Communications and Media

Design and Development

Medical Content Development

Patient Advocacy and Legal

Offices

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