The Myositis Association
Linda J. Kobert serves as a Research and Communications Specialist at The Myositis Association since April 2023 and is the Founder of their own consultancy, Linda J Kobert, established in December 2022. With extensive experience in healthcare communication, advocacy, and writing, Linda has held significant roles including Director of Communications and Patient Advocacy at CSI Pharmacy and Research and Communications Director at The Myositis Association. Linda's writing portfolio spans blogs, articles, and various publications, reflecting a deep commitment to rare disease advocacy, healthcare access, and civil rights. Linda holds an MSN in Nursing Education from the University of Pittsburgh and an MFA in Creative Writing from the University of Southern Maine.
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The Myositis Association
The Myositis Association (TMA) is a non-profit, voluntary health agency dedicated to improving the lives of people affected by myositis. Founded in 1993, TMA has grown from 16 patients, who helped form the organization, to more than 6,000 members who have been served by TMA. TMA is governed by a volunteer Board of Directors that includes patients, family members and interested professionals, bringing diverse strengths and perspectives to the organization. Through member newsletters, publications, support groups, research and advocacy, TMA helps those who have myositis today and works to prevent any others from having to experience myositis in the future.