Angelman Syndrome Foundation
Haley Neef is an experienced Pediatric Gastroenterologist with 15 years of clinical and quality improvement experience. Currently employed at AristaMD, Haley provides E-Consults and support for PCPs nationwide, while also serving as a Pediatric Gastroenterologist at ConferMED. Concurrently, Haley holds a position as an Account Manager at the Angelman Syndrome Foundation and volunteers as an M.D. Previous roles include Clinical Assistant Professor at Sparrow Health System and the University of Michigan Hospitals and Health Centers, focusing on diagnostic and therapeutic endoscopy, as well as medical education. Haley earned a Doctor of Medicine from the University of Miami, with a Bachelor of Arts in Biology from Kalamazoo College.
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Angelman Syndrome Foundation
Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. AS is often misdiagnosed as cerebral palsy or autism due to lack of awareness. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome will require life-long care. Because of its genetic relationship to autism and other disorders, many researchers believe that curing Angelman syndrome will lead to cures for similar disorders. Angelman syndrome research is on the cusp of potential treatments to reverse the debilitating symptoms of Angelman syndrome. The Angelman Syndrome Foundation raises funds for Angelman syndrome research and supports families. Use this website to keep abreast of current information regarding research, education, general information and therapies for Angelman syndrome. If you have any questions or would like additional information please email the ASF at info@angelman.org.