Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. AS is often misdiagnosed as cerebral palsy or autism due to lack of awareness. Characteristics of the disorder include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with Angelman syndrome will require life-long care.
 
Because of its genetic relationship to autism and other disorders, many researchers believe that curing Angelman syndrome will lead to cures for similar disorders. Angelman syndrome research is on the cusp of potential treatments to reverse the debilitating symptoms of Angelman syndrome.

The Angelman Syndrome Foundation raises funds for Angelman syndrome research and supports families. Use this website to keep abreast of current information regarding research, education, general information and therapies for Angelman syndrome. If you have any questions or would like additional information please email the ASF at info@angelman.org.

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Angelman Syndrome Foundation

Kyle Rooney

Lesley Mccallister

The Event Management Team at the Angelman Syndrome Foundation is responsible for planning, organizing, and executing events that raise awareness and funds for Angelman syndrome research. This team coordinates various fundraising initiatives, community engagement activities, and educational events to support families affected by the disorder. By fostering community connections and creating impactful experiences, they aim to advance the mission of the foundation and promote potential treatments for Angelman syndrome.

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