HHT afflicts the lives of more than 1.4 million people worldwide with most unaware that "nosebleeds in the family"​ can be something much more and potentially life threatening. The HHT Foundation is the only patient advocacy organization in the world solely focused on individuals living with this disease. You can be sure that your investment in the HHT Foundation will go to the highest-return initiatives that can improve life of HHT patients today and in future generations by:

- Providing "seed money"​ for research on promising therapies
- Improving access to care by adding more HHT Treatment Centers
- Building a registry of HHT patients to find which treatments work best
- Standardizing HHT treatments to ensure patients get global best practices

Charity

Health Care

Non Profit

Cure HHT

Sara Palmer

Benjamin Holt

Nicole Schaefer

The Donor Relations and Community Engagement team at Cure HHT is dedicated to fostering strong relationships with donors and community stakeholders to raise awareness and support for HHT initiatives. They engage in outreach activities, coordinate fundraising campaigns, and build strategic partnerships to enhance the foundation's impact. By connecting with patients, families, and healthcare providers, this team aims to promote understanding of HHT and drive resources towards effective research and treatment solutions.

Donor Relations and Community Engagement

Operations and Support

Leadership Team

Donor Relations and Community Engagement

About

Team members

Other teams at Cure HHT

Operations and Support

Leadership Team