HHT afflicts the lives of more than 1.4 million people worldwide with most unaware that "nosebleeds in the family"​ can be something much more and potentially life threatening. The HHT Foundation is the only patient advocacy organization in the world solely focused on individuals living with this disease. You can be sure that your investment in the HHT Foundation will go to the highest-return initiatives that can improve life of HHT patients today and in future generations by:

- Providing "seed money"​ for research on promising therapies
- Improving access to care by adding more HHT Treatment Centers
- Building a registry of HHT patients to find which treatments work best
- Standardizing HHT treatments to ensure patients get global best practices

Charity

Health Care

Non Profit

Cure HHT

Sara Palmer

Benjamin Holt

Nicole Schaefer

The Leadership Team at Cure HHT is responsible for guiding the organization's strategic vision and operations to improve the lives of individuals affected by HHT. This team works on securing funding for research initiatives, expanding access to specialized care, and developing standard practices for HHT treatments, while also fostering collaborations that empower patients and their families. Through their leadership, they ensure that the foundation effectively addresses the critical needs of the HHT community.

Leadership Team

Operations and Support

Donor Relations and Community Engagement

Leadership Team

About

Team members

Other teams at Cure HHT

Operations and Support

Donor Relations and Community Engagement