HHT afflicts the lives of more than 1.4 million people worldwide with most unaware that "nosebleeds in the family"​ can be something much more and potentially life threatening. The HHT Foundation is the only patient advocacy organization in the world solely focused on individuals living with this disease. You can be sure that your investment in the HHT Foundation will go to the highest-return initiatives that can improve life of HHT patients today and in future generations by:

- Providing "seed money"​ for research on promising therapies
- Improving access to care by adding more HHT Treatment Centers
- Building a registry of HHT patients to find which treatments work best
- Standardizing HHT treatments to ensure patients get global best practices

Charity

Health Care

Non Profit

Cure HHT

Sara Palmer

Riley Blevins

Marc Topaz

Marianne Clancy

Nicole Schaefer

The Research and Grants Team at Cure HHT is dedicated to advancing the understanding and treatment of Hereditary Hemorrhagic Telangiectasia (HHT) through the coordination of research initiatives and funding opportunities. This team works to secure grants, manage research projects, and establish collaborations that facilitate innovative therapies and improve patient care. By building a comprehensive registry of HHT patients and promoting best treatment practices globally, they aim to enhance the quality of life for individuals affected by this condition.

Research and Grants Team

Operations and Support

Donor Relations and Community Engagement

Leadership Team

Research and Grants Team

About

Team members

Other teams at Cure HHT

Operations and Support

Donor Relations and Community Engagement

Leadership Team