Annie Kennedy

Chief Of Policy, Advocacy, And Patient Engagement at EveryLife Foundation for Rare Diseases

Annie Kennedy currently serves as the Chief of Policy, Advocacy, and Patient Engagement at the EveryLife Foundation for Rare Diseases, a role held since November 2019, focused on improving health outcomes for individuals living with rare diseases through science-driven public policy and strategic partnerships. Prior to this position, Annie was the Senior Vice President of Legislation & Public Policy at Parent Project Muscular Dystrophy from September 2014 to November 2019, where efforts centered on advancing priorities for the Duchenne muscular dystrophy community. Earlier, Annie was the Senior Vice President of Advocacy at the Muscular Dystrophy Association from 1998 to August 2014. Educational qualifications include a degree from Mount Saint Mary's University, obtained between 1992 and 1996.

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