EveryLife Foundation for Rare Diseases

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The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit dedicated to accelerating biotech innovation.

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Emil Kakkis
President

Emil Kakkis

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Annie Kennedy
Chief Of Policy, Advocacy, And Patient Engagement
Ted Brasfield
Vice President Of Alliance Development
Alyssa Terwall
Vice President Of Operations And Events
Michael Pearlmutter
Chief Executive Officer
James Uyeda
Vice President Of Individual Giving

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