Global Genes is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, caregivers, advocates, and clinical partners.

Non Profit

Global Genes

Charlene Son Rigby

Bridget Michaels

Katelyn Peters

Andrea Rogers

Karmen Trzupek

Vanessa Voge-Farley

Teneasha Washington

Barry Weber

Victoria Weiss

Katherine Lim

Shankar Ramkellawan

Nick Ehly

Kathy O’Connor

Pam Todd Email

Lisa James

Kristin Soto

Mindy Gikas

Shruti Mitkus

Tim Ehrhard

Maria Della Rocca

Pam Rattananont

The Patient Services and Support team at Global Genes is dedicated to empowering individuals affected by rare diseases through personalized guidance and resources. They provide comprehensive support services, including advocacy, educational materials, and strategic partnerships, to enhance the patient and caregiver experience within the rare disease community.

Patient Services and Support

Advisory and Council Roles

Marketing and Communications

Patient Services and Support

About

Team members

Other teams at Global Genes

Advisory and Council Roles

Marketing and Communications