Global Genes

1 follower

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Global Genes is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, caregivers, advocates, and clinical partners.

Industries

Non Profit

Headquarters

Aliso Viejo, United States

Employees

11-50

Links

Org chart

Charlene Son Rigby

CEO

Charlene Son Rigby

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Barry Weber

Data Protection Officer & Chief Information Security Officer

Pam Rattananont

VP, Development & Marketing

Kathy O’Connor

Senior Director, Corporate Engagement

Maria Della Rocca

Senior Director, Patient Services

Karmen Trzupek

Senior Director of Scientific Programs

Victoria Weiss

Senior Director, Finance

Teneasha Washington

Diversity, Equity & Inclusion Lead

Nicole Boice

Chief Mission Officer

Teams

+25

Advisory and Council Roles

28 members

Marketing and Communications

3 members

Patient Services and Support

4 members

Research and Data Management

5 members

Community Engagement and Support

3 members

Leadership Team

2 members

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