Founded in 1983 as a family support group, the Hydrocephalus Association has grown to become the largest patient advocacy group for hydrocephalus in the United States.  The mission of the Hydrocephalus Association is to promote a cure for hydrocephalus and improve the lives of those affected by the condition.

Charity

Health Care

Non Profit

Hydrocephalus Association

Hydrocephalus Association's headquarters in Bethesda, MD, United States

Jennifer Bulthuis

Diana Gray

Monica Chau

Yehuda Gelman

Lakisha Harris

Rachel Donahue

Veronika Ross

Linda Riley

Brian Saphier

Jackie Mullock

This department focuses on fundraising initiatives, financial management, and educational program development.

Development and Finance

This department focuses on developing and managing programs that enhance support and educational initiatives.

Support and Education

This department fosters relationships and communications within community networks to enhance collaboration and participation.

Community Engagement

The Community Engagement Team at the Hydrocephalus Association focuses on fostering connections and support among those impacted by hydrocephalus. They organize and manage local and national events, such as community walks and fundraising initiatives, to raise awareness and funds for research and support services. Additionally, they oversee support programs, facilitate educational resources, and coordinate advocacy efforts to further the association's mission of promoting a cure and improving the lives of those affected by hydrocephalus.

Community Engagement Team

This department drives the overall vision and strategic direction of the organization.

Leadership and Governance

This department focuses on promoting mental well-being and mindfulness practices within the organization.

Hydrocephalus Association

Org chart

Teams

Development and Finance

Support and Education

Community Engagement

Community Engagement Team

Leadership and Governance

Mindfulness and Awareness

Offices

Hydrocephalus Association

Org chart

Teams

Development and Finance

Support and Education

Community Engagement

Community Engagement Team

Leadership and Governance

Mindfulness and Awareness

Offices

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