Rick Otis

The International Rett Syndrome Foundation (IRSF) is the leading research, family support, and advocacy organization for Rett syndrome. We fund trailblazing research seeking treatments and a cure; empowering support that helps families cope and offers hope; and increasing awareness of this rare disorder that can affect nearly every aspect of any individual’s life. We are transforming lives every day in our fight to treat and cure Rett, presenting the best opportunity to better the lives of families living with this devastating disorder.