National Down Syndrome Congress
Stephanie Smith Lee is an accomplished advocate with extensive experience in policy development and implementation related to inclusive education and disability issues. Currently serving as a Senior Policy Advisor at the National Down Syndrome Congress since January 2017, Stephanie leads advocacy efforts for inclusive higher education opportunities for individuals with intellectual disabilities. Stephanie's prior roles include consulting as an independent public policy professional, chairing the Think College Accreditation Workgroup, and serving as a Director at the U.S. Department of Education overseeing special education programs. With a strong background in legislative affairs and nonprofit management, Stephanie has held key positions at various organizations, including the National Down Syndrome Society and a foundation, demonstrating expertise in evaluating nonprofit effectiveness and mobilizing statewide disability coalitions. Stephanie holds a Bachelor's degree in Political Science and Government from American University in Washington, DC.
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National Down Syndrome Congress
We are the National Down Syndrome Congress, known around the world as NDSC. We are the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome, from the moment of prenatal diagnosis through adulthood. NDSC is a member-sustained non-profit organization, composed of parents, self-advocates, siblings, grandparents, educators, physicians, therapists, other professionals, friends, and supporters. Our purpose is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. Often, a family’s first interaction with the NDSC comes from a phone call as a new or expectant parent. This can begin a lifelong relationship with the NDSC, as our programs and resources are available to individuals with Down syndrome and their families at every step of the way. Our services are available in both English and Spanish.