Pamela Gavin

Pamela Gavin sets the strategic direction for National Organization for Rare Disorders (NORD®) and implements programs and services that provide innovative solutions to address the needs of the rare disease community. She is responsible for bringing together all stakeholders within the rare disease space and works closely with NORD’s board of directors, donors, corporate council and member organizations, other partners, and staff.

Prior to joining NORD in 2010, Pam spent 13 years executing complex, multi-stakeholder programs aimed at improving healthcare safety. As a consultant to the federal government, she implemented a new web-based portal for reporting pre-market and post-market safety data to the Food and Drug Administration (FDA) and National Institutes of Health (NIH), for which she received Special Citations from the FDA Commissioner and Director of the Center for Food Safety and Applied Nutrition (CFSAN) for outstanding leadership and teamwork.

As Senior Director in the Office of the President at the University of Pittsburgh Medical Center, Pam worked in an equity partner business unit, bringing new concepts and emerging technologies to market to improve healthcare delivery. She oversaw several strategic business initiatives, including a clinical trial enrollment and adverse event reporting system; a multi-biomarker assay for the early detection of ovarian cancer; a medical simulation training system; and a clinical decision support system for infection control and antibiotic management.